According to an article by Charlotte Grinberg sometimes it is simply not realistically possible for people to receive the care they need at home. This may be due to financial issues, the need for professional medical care, or the need for supervision and assistance with the daily activities of living.
According to a study published by The Center for Retirement Research, “about one-third of retirees do not have the resources for even minimal care and only one-fifth can afford severe care.” This is at least in part due to “Medicare’s insufficient funding for in-home caregiving support for those receiving hospice [which] makes dying at home unaffordable and impossible for far too many.”
Eventually, one might need to consider a long-term care facility and/or hospice. How do you know when to make that transition? AARP offers many resources for people trying to think and plan ahead for long term care, and the federal government runs LongTermCare.gov to help people make well informed decisions. More information is available at FloridaHealthFinder.gov. (Much of the information here is taken from that site.)
Hospice provides a coordinated program of professional and volunteer services for patients with a terminal illness. Staff members are specially trained to assist you and your loved ones in dealing with end-of-life issues. They offer palliative care, which provides comfort and relieves pain and other symptoms when there is no cure available. Hospice allows you to die with dignity, respecting your values and encouraging you and your loved ones to be involved in the decision making process all along the way. The goal is to provide a good quality of life while preparing for the end of life.
Tallahassee is home to a number of great hospice organizations with positive reputations in the community and flexible approaches. In Tallahassee, most hospice organizations exclusively offer services wherever the patients call home, with one Hospice Inpatient Facility, (The Dozier House, Big Bend Hospice).
To be eligible for hospice services a patient must have a prognosis of living six months or less and no longer want curative care. If a patient lives beyond six months after admission they can continue to receive services as long as the doctor continues to document the patient’s eligibility. Hospice services are often not fully used because most people turn to hospice only during the last two to six weeks of the patient’s life, though they could have the services for much longer.
Services can include nursing and physician care; social work; pastoral services; nutritional counseling; grief counseling for patients and their families; physical, occupational, speech, and massage therapy; music and art therapy; home health aide and homemaker services; home medical supplies and equipment; and respite services for caregivers. Grief counseling and support continue to be available to loved ones after the patient dies.
You can find a list of Florida hospice providers, home health agencies, and nurse registries on Facility Locator at FloridaHealthFinder.gov. After you have an agency or a list of agencies click on a name to find the address, phone number, driving directions, the administrator and owner, emergency actions (where applicable), and a link to inspection reports.